Getting myself found

Caren Gussoff Sumption
10 min readSep 10, 2020
Photo by Daniel Jensen on Unsplash

Please note: I made some decisions and drew some parameters in this personal essay. The generally and stylistically preferred terms/constructions are Autism Spectrum Disorder (ASD) and person-first language,. In this essay, I use “ASD” and “autism,” and “people with autism” and “autistic people” interchangeably. I also lean on the crappy terms “low” and “high” functioning, for simplicity’s sake only. When I specify gender, I’m not including sex, but include anyone with that gender identity. I also did not address the barriers my trans and enby family face with the same issues.

In the 80s, we didn’t talk about Autism Spectrum Disorder.

We talked a lot about nuclear war and Communism, about saying no to drugs, about poisoned Tylenol bottles and razors in Halloween candy.

We talked about drunk driving, stranger danger, and windowless vans. Satanists and what lyrics said backwards. The PMRC, MTV.

Later, we’d also talk about AIDS, and a little around depression, suicide, and teenage pregnancy.

But not ASD.

In fact, I can remember only a few instances of anything about anyone with autism ever — the non-verbal teenager and his snow globe at the end of “St. Elsewhere,” and Dustin Hoffman as a savant, capped by a really bad haircut.

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